Amyloidosis

Talking often with the doctor is important to make informed decisions about your health care. These suggested questions are a starting point to help you learn more about your cancer care and treatment. You are also encouraged to ask additional questions that are important to you.

• Can you explain my pathology report (laboratory test results) to me?
• What organs, tissues, and/or parts of my body are affected?
• What will be the progression of amyloidosis? Is it possible to slow down this disease? Is it curable?
• What are my treatment options?
• Can my symptoms be controlled with medication alone?
• What clinical trials are open to me?
• What treatment plan do you recommend? Why?
• What is the goal of each treatment?
• Who will be part of my health care team, and what does each member do?
• Who will be coordinating my overall treatment and follow-up care?
• What are the possible side effects of this treatment, both in the short term and the long term?
• How will this treatment affect my daily life? Will I be able to work, exercise, and perform my usual activities?
• If I'm worried about managing the costs related to my medical care, who can help me with these concerns?
• What follow-up tests will I need, and how often will I need them?
• What support services are available to me? To my family?