Amyloidosis: Questions to Ask the Doctor

Approved by the Cancer.Net Editorial Board, 02/2015

ON THIS PAGE: You will find some questions to ask your doctor or other members of your health care team to help you better understand your diagnosis, treatment plan, and overall care. To see other pages, use the menu on the side of your screen.

Talking often with the doctor is important to make informed decisions about your health care. These suggested questions are a starting point to help you learn more about your care and treatment. You are also encouraged to ask additional questions that are important to you. You may want to print this list and bring it to your next appointment, or download Cancer.Net’s free mobile app for an e-list and other interactive tools to manage your care.

Questions to ask after getting a diagnosis

  • Can you explain my pathology report (laboratory test results) to me?
  • What organs, tissues, and/or parts of my body are affected?
  • How will this type of amyloidosis progress? Is it possible to slow down this disease? Is it curable?

Questions to ask about choosing a treatment and managing side effects

  • What are my treatment options?
  • Can my symptoms be controlled with medication alone?
  • What clinical trials are open to me? Where are they located, and how do I find out more about them?
  • What treatment plan do you recommend? Why?
  • What is the goal of each treatment? Is it to eliminate the underlying disease, help me feel better, or both?
  • Who will be part of my health care team, and what does each member do?
  • Who will be coordinating my overall treatment?
  • What are the possible side effects of this treatment, both in the short term and the long term?
  • How will this treatment affect my daily life? Will I be able to work, exercise, and perform my usual activities?
  • If I’m worried about managing the costs related to my medical care, who can help me with these concerns?
  • Could this treatment affect my sex life? If so, how and for how long?
  • Could this treatment affect my ability to become pregnant or have children? If so, should I talk with a fertility specialist before treatment begins?
  • What support services are available to me? To my family?
  • Whom should I call for questions or problems?
  • Is there anything else I should be asking?

Questions to ask about planning follow-up care

  • Are there any signs and symptoms I should watch for?
  • What long-term side effects or late effects are possible based on the treatment I received?
  • What follow-up tests will I need, and how often will I need them?
  • How do I get a treatment summary and follow-up care plan to keep in my personal records? 
  • Who will be coordinating my follow-up care?
  • What support services are available to me after treatment has finished? To my family?

The next section in this guide is Additional Resources, and it offers some more resources on this website beyond this guide that may be helpful to you. Or, use the menu on the side of your screen to choose another section to continue reading this guide.