Craniopharyngioma - Childhood: Questions to Ask the Doctor

Approved by the Cancer.Net Editorial Board, 04/2015

ON THIS PAGE: You will find some questions to ask your child’s doctor or other members of the health care team, to help you better understand the diagnosis, treatment plan, and overall care. To see other pages, use the menu on the side of your screen.

Talking often with the doctor is important to make informed decisions about your child’s health care. These suggested questions are a starting point to help you learn more about your care and treatment. You are also encouraged to ask additional questions that are important to you. You may want to print this list and bring it to your child’s next appointment, or download Cancer.Net’s free mobile app for an e-list and other interactive tools to manage your child’s care.

Questions to ask after getting a diagnosis

  • What type of tumor does my child have?

  • Are other tests or surgery needed to confirm this diagnosis?

  • Can you explain my child’s pathology report (laboratory test results) to me?

  • What is your familiarity with craniopharyngioma and its treatment?

  • How many CNS tumors do you treat each year?

  • Do you attend meetings to discuss complicated tumor cases and possible new treatments for these tumors? What types of specialists attend such meetings?

  • Will an experienced neuropathologist review my child’s pathology slides?

Questions to ask about choosing a treatment and managing side effects

  • What are the treatment options?

  • What clinical trials are open to my child? Where are they located, and how do I find out more about them?

  • Who will be part of my child’s health care team, and what does each member do?

  • Who will be coordinating my child’s overall treatment?

  • What treatment plan do you recommend? Why?

  • What is the goal of each treatment? Is it to eliminate the tumor, help my child feel better, or both?

  • Should I get a second opinion on this treatment plan?

  • Are there pediatric treatment centers that you recommend?

  • What are the chances for success with the planned treatment?

  • Does your practice include multidisciplinary care?

  • What are the possible side effects of this treatment, both in the short term and the long term?

  • Could the treatment affect my child’s vision?

  • How will this treatment affect my child’s daily life? Will he or she be able to go to school and perform his or her usual activities?

  • Is my child at risk for being overweight due to the tumor or its treatment? If so, how can we reduce his/her risk?

  • If I’m worried about managing the costs related to my child’s medical care, who can help me with these concerns?

  • Could this treatment affect my child’s fertility (ability to have a child in the future)?

  • Do you work with a social worker that assists children with CNS tumors and their families?

  • Do you know of a local support group for families with a child diagnosed with a CNS tumor?

  • Do you have reading material that would help me understand my child’s disease?

  • Who answers questions when you are unavailable?

  • What support services are available to my child? To my family?

  • Whom should I call for questions or problems?

Questions to ask about having surgery

  • What type of surgery will my child have?

  • How long will the operation take?

  • How long will he or she be in the hospital?

  • Can you describe what recovery from surgery will be like?

  • What are the possible long-term effects of having this surgery?

Questions to ask about having radiation therapy

  • What type of treatment is recommended?

  • What is the goal of this treatment?

  • How long will it take to give this treatment?

  • What side effects can I expect during treatment?

  • What are the possible long-term effects of having this treatment?

  • What can be done to relieve the side effects?

Questions to ask about planning follow-up care

  • What is the risk of the tumor returning? Are there signs and symptoms I should watch for?

  • What long-term side effects or late effects are possible based on the treatment my child received?

  • What follow-up tests will my child need, and how often will he or she need them?

  • How do I get a treatment summary and survivorship care plan to keep in my personal records?

  • Who will be coordinating my child’s follow-up care?

  • What survivorship support services are available to my child? To my family?

The next section in this guide is Additional Resources, and it offers some more resources on this website beyond this guide that may be helpful to you. Or, use the menu on the side of your screen to choose another section to continue reading this guide.