Ewing Family of Tumors - Childhood

Talking often with the doctor is important to make informed decisions about your child’s health care. These suggested questions are a starting point to help you learn more about your cancer care and treatment. You are also encouraged to ask additional questions that are important to you.

• What type of EFT has been diagnosed?
• Where exactly is the tumor located?
• Can you explain my child’s pathology report (laboratory test results) to me?
• What are the treatment options?
• What clinical trials are open to my child?
• What treatment plan do you recommend? Why?
•  What are the potential risks and benefits of each treatment?
• What chemotherapy will my child receive? How long and how frequently?
• Will my child receive radiation therapy?
• How can I best prepare my child for each treatment?
• How long will my child stay in the hospital?
• Who will be part of my child’s health care team, and what does each member do?
• Who will be coordinating my child’s overall treatment and follow-up care?
• What are the possible side effects of this treatment, both in the short term and the long term?
• How will this treatment affect my child’s daily life? Will he or she be able to go to school and perform his or her usual activities?
• If I’m worried about managing the costs related to my child’s medical care, who can help me with these concerns?
• Do we need to consider options to preserve my child's fertility prior to starting treatment, such as sperm storage (for boys)? Should we talk with a fertility specialist before treatment begins?
• What follow-up tests will my child need, and how often will he or she need them?
• What support services are available to my child? To my family?
• Whom do I call for questions or problems?