ON THIS PAGE: You will read about your child’s medical care after cancer treatment is finished and why this follow-up care is important. To see other pages, use the menu on the side of your screen.
After treatment for Ewing sarcoma ends, talk with your child’s doctor about developing a follow-up care plan. This plan may include regular physical examinations and/or medical tests to monitor your child’s recovery for the coming months and years. All children treated for cancer, including Ewing sarcoma, should have life-long follow-up care by a doctor or health care team familiar with the late effects of chemotherapy and radiation therapy.
Children and teens who received chemotherapy will need to be monitored for potential problems with their sexual development and fertility (ability to have children). Your child may need to be referred to an endocrinologist, a doctor who specializes in problems with glands and the endocrine system, for evaluation in these areas. Other late effects may include delayed or stunted growth and delayed or missed developmental milestones. Learn more about the late effects of childhood cancer and find a Children’s Oncology Group follow-up clinic.
Based on the type of treatment your child received, the doctor will determine what examinations and tests are needed to check for long-term side effects and the possibility of secondary cancers. Follow-up care usually includes bone scans, CT scans, MRI scans, and x-rays. Your child’s doctor can recommend the necessary screening tests. Follow-up care should also address your child’s quality of life, including any developmental or emotional concerns. Learn more about childhood cancer survivorship.
Parents and guardians are encouraged to organize and keep a record of their child’s medical information. That way, as the child enters adulthood, he or she has a clear, written history of the diagnosis, the treatment given, and the doctor’s recommendations about the schedule for follow-up care. The doctor’s office can help you create this, and it should include recommendations from the doctor about the schedule for follow-up care. This information will be valuable to doctors who care for your child during his or her lifetime. ASCO offers cancer treatment summary forms to help keep track of the treatment your child received and develop a survivorship care plan once treatment is completed.
Children and teens who have had cancer can also enhance the quality of their future by following established guidelines for good health into and through adulthood, including not smoking, maintaining a healthy weight, eating a balanced diet, and participating in regular physical activity. Talk with the doctor about developing a plan that is best for your child’s needs. Learn more about the next steps to take in survivorship.
The next section offers a list of questions you may want to ask. Use the menu on the side of your screen to select Questions to Ask the Doctor, or you can select another section, to continue reading this guide.