Mastocytosis: After Treatment

Approved by the Cancer.Net Editorial Board, 05/2014

ON THIS PAGE: You will read about your medical care after treatment for mastocytosis is finished and why this follow-up care is important. To see other pages, use the menu on the side of your screen.

After treatment for mastocytosis ends, talk with your doctor about developing a follow-up care plan. This plan may include regular physical examinations and/or medical tests to monitor your recovery for the coming months and years. Follow-up visits will include blood tests and possibly scans or other imaging studies. Normally, follow-up visits are most frequent in the first three years after treatment, but patients are encouraged to have lifelong, follow-up care.

If you have received treatment for a mastocytosis-related cancer, ASCO offers cancer treatment summary forms to help keep track of the cancer treatment you received and develop a survivorship care plan once treatment is completed.

People who received ultraviolet (UV) rays for the treatment of cutaneous mastocytosis should be aware of an increased risk of skin cancer in the future. Follow-up physical examinations and skin evaluations are important in the early diagnosis and prevention of this condition.

Chemotherapy may cause several long-term side effects:

  • People who have received certain drugs may develop lung damage.
  • Heart damage in the form of a weakened heart muscle may occur in people who have received a higher dose of doxorubicin (Adriamycin) or radiation therapy to the chest.
  • Infertility (inability to have children) or early menopause can occur in people who have received high-dose cyclophosphamide (Cytoxan, Neosar) or other chemotherapy. Learn more about fertility concerns and preservation for men and women.
  • Secondary cancers like leukemia are more common in people who received chemotherapy. Secondary cancers are cancers that develop as a result of the treatment for another type of cancer.

People recovering from mastocytosis are encouraged to follow established guidelines for good health, such as maintaining a healthy weight, eating a balanced diet, and having recommended cancer screening tests. Talk with your doctor to develop a plan that is best for your needs. Moderate physical activity can help rebuild your strength and energy level. Your doctor can help you create an appropriate exercise plan based upon your needs, physical abilities, and fitness level. Learn more about the next steps to take in survivorship, including making positive lifestyle changes.

The next section offers a list of questions you may want to ask. Use the menu on the side of your screen to select Questions to Ask the Doctor, or you can select another section, to continue reading this guide.