ON THIS PAGE: You will read about the scientific research being done now to learn more about mastocytosis and how to treat it. To see other pages in this guide, use the colored boxes on the right side of your screen, or click “Next” at the bottom.
Doctors are working to learn more about mastocytosis, ways to prevent it, how to best treat it, and how to provide the best care to people diagnosed with this disease. The following areas of research may include new options for patients through clinical trials. Always talk with your doctor about the diagnostic and treatment options best for you.
Targeted therapy. As explained in the Treatment section, some people with mastocytosis have a mutation of the c-kit tyrosine kinase receptor, which causes mast cell growth. Early results from clinical trials show that the drug imatinib and other tyrosine kinase inhibitors, such as dasatinib and nilotinib, may help treat mastocytosis. In addition, a new drug called midostaurin is also being studied for mastocytosis.
Supportive care. Clinical trials are underway to find better ways of reducing symptoms and side effects of current treatments for mastocytosis in order to improve patients’ comfort and quality of life.
To find clinical trials specific to your diagnosis, talk with your doctor or search online clinical trial databases now. Please note this link takes you outside of this guide.
To continue reading this guide, choose “Next” (below, right) to see a section about coping with the side effects of the disease or its treatment. Or, use the colored boxes located on the right side of your screen to visit any section.