Neuroendocrine Tumor: Statistics

Approved by the Cancer.Net Editorial Board, 11/2016

ON THIS PAGE: You will find information about the number of people who are diagnosed with a neuroendocrine tumor each year. You will read general information on surviving the disease. Remember, survival rates depend on several factors. Use the menu to see other pages.

Overall, it is estimated that more than 12,000 people in the United States are diagnosed with a neuroendocrine tumor each year.

The 5-year survival rate tells you what percent of people live at least 5 years after the cancer is found. Percent means how many out of 100. The 5-year survival rate of people with a neuroendocrine tumor varies and depends on several factors, including the type of neuroendocrine tumor and where the tumor is located. Check the section for the specific type of neuroendocrine tumor (see the Introduction section) for more information.

Estimates for pheochromocytoma are not available, but it is considered rare.

More than 1,500 people in the United States are diagnosed with Merkel cell skin cancer each year. Almost all people diagnosed with the disease are over age 50, and 90% of cases occur in white people. The 5-year survival rate of people with Merkel cell cancer is about 60%. It is much higher if the cancer is found early, before it has spread to the lymph nodes or distant parts of the body.

It is important to remember that statistics on the survival rates for people with a neuroendocrine tumor are an estimate. The estimate comes from annual data based on the number of people with this cancer in the United States. Also, experts measure the survival statistics every 5 years. So the estimate may not show the results of better diagnosis or treatment available for less than 5 years. People should talk with their doctor if they have questions about this information. Learn more about understanding statistics.

Source: Neuroendocrine Tumor Research Foundation and the American Cancer Society.

The next section in this guide is Risk Factors. It explains what factors may increase the chance of developing this disease. Or, use the menu to choose another section to continue reading this guide.