Pituitary Gland Tumor: Follow-Up Care

Approved by the Cancer.Net Editorial Board, 11/2014

ON THIS PAGE: You will read about your medical care after cancer treatment is completed, and why this follow-up care is important. To see other pages, use the menu on the side of your screen.

Care for people diagnosed with cancer doesn’t end when active treatment has finished. Your health care team will continue to check to make sure the cancer has not returned, manage any side effects, and monitor your overall health. This is called follow-up care.

This plan may include regular physical examinations and/or medical tests to monitor your recovery for the coming months and years. Once surgery to remove a pituitary gland tumor is done, the patient is usually monitored by both an endocrinologist and a neurosurgeon. Follow-up care for a pituitary gland tumor may include regular tests to measure hormone levels and MRI scans, usually done yearly, to learn how well treatment worked. Talk with your doctor about any new symptoms you experience. Learn more about the importance of follow-up care.

Watching for recurrence

One goal of follow-up care is to check for a recurrence. Cancer recurs because small areas of cancer cells may remain undetected in the body. Over time, these cells may increase in number until they show up on test results or cause signs or symptoms. During follow-up care, a doctor familiar with your medical history can give you personalized information about your risk of recurrence. Your doctor will also ask specific questions about your health. Some people may have blood tests or imaging tests as part of regular follow-up care, but testing recommendations depend on several factors including the type and stage of cancer originally diagnosed and the types of treatment given.

Managing long-term and late side effects

Most people expect to experience side effects when receiving treatment. However, it is often surprising to survivors that some side effects may linger beyond the treatment period. These are called long-term side effects. In addition, other side effects called late effects may develop months or even years afterwards. Long-term and late effects can include both physical and emotional changes.

During treatment, patients with a pituitary tumor may experience a number of symptoms that may affect the ability to function fully and conduct a normal life; however after treatment, most people can lead full and active lives. Patients with impaired vision may need special accommodation after treatment. Studies show that people with Cushing's disease are most affected after treatment, mostly because they are also most affected before treatment, meaning recovery often takes longer. Some people with too much prolactin (a hormone that stimulates lactation and the secretion of progesterone) or growth hormone may also be significantly affected.

Radiation therapy can have late effects, in particular decreasing hormone production from the pituitary gland. These can take five to seven years to develop, but they do not occur in all patients. Talk with your doctor about the symptoms or signs to watch for during the recovery period.

As most pituitary tumors are noncancerous, these tumors do not usually spread to other parts of the body. However, patients may be at risk for developing other types of cancer. For example, patients with too much growth hormone have a higher risk of developing colon cancer or thyroid cancer, but only if the tumor was not completely removed during surgery and growth hormone levels are still high. People with MEN1 syndrome or Carney complex need regular screening for the other tumors associated with that condition. Most people treated for a pituitary tumor need regular follow-up tests to make sure that the tumor has not come back. ASCO offers treatment summary forms to help keep track of the treatment you received and develop a survivorship care plan once treatment is completed.

Talk with your doctor about your risk of developing such side effects based on the type of cancer, your individual treatment plan, and your overall health. If you had a treatment known to cause specific late effects, you may also have certain physical examinations, scans, or blood tests to help find and manage them.

Keeping personal health records

You and your doctor should work together to develop a personalized follow-up care plan. Be sure to ask about any concerns you have about your future physical or emotional health. ASCO offers forms to help create a treatment summary to keep track of the cancer treatment you received and develop a survivorship care plan once treatment is completed.

This is also a good time to decide who will lead your follow-up care. Some survivors continue to see their oncologist, while others transition back to the general care of their family doctor or another health care professional. This decision depends on several factors, including the type and stage of cancer, side effects, health insurance rules, and your personal preferences.

If a doctor who was not directly involved in your cancer care will lead your follow-up care, be sure to share your cancer treatment summary and survivorship care plan forms with him or her, as well as all future health care providers. Details about your cancer treatment are very valuable to the health care professionals who will care for you throughout your lifetime.

The next section in this guide is Survivorship and it describes how to cope with challenges in everyday life after a cancer diagnosis. Or, use the menu on the side of your screen to choose another section to continue reading this guide.