ON THIS PAGE: You will read about your child’s medical care after treatment is finished and why this follow-up care is important. To see other pages in this guide, use the colored boxes on the right side of your screen, or click “Next” at the bottom.
After treatment for PPB ends, talk with your child’s doctor about developing a follow-up care plan. This plan may include regular physical examinations and/or medical tests to monitor your child’s recovery for the coming months and years. All children treated for a tumor, including PPB, should have life-long, follow-up care.
If a recurrence happens, it is more likely to occur in the first few years after the original treatment. Therefore, regular screening should continue for two to three years (or possibly up to five years) after diagnosis. Very rarely, PPB returns after these standard periods of follow-up. It is important to note that PPB can rapidly grow, and this possibility should be discussed with your child’s doctor, including what signs and symptoms to watch for.
Many of the current treatments that are effective in treating childhood tumors are associated with side effects, both in the short and long term. Lifelong follow-up care is based on the dosage and specific chemotherapy used in treatment, as well as the dosage of radiation therapy. Recommendations for follow-up care according to the risk of possible late effects of treatment have been developed by the Children's Oncology Group and can be found at CureSearch.org.
Based on the type of treatment your child received, the doctor will determine what examinations and tests are needed to check for long-term side effects and the possibility of secondary cancers. Your child’s doctor can recommend the necessary screening tests. Follow-up care should also address your child’s quality of life, including any developmental or emotional concerns. Learn more about childhood cancer survivorship.
The child’s family is encouraged to organize and keep a record of the child’s medical information. That way, as the child enters adulthood, he or she has a clear, written history of the diagnosis, the treatment given, and the doctor’s recommendations about the schedule for follow-up care. The doctor’s office can help you create this. This information will be valuable to doctors who care for your child during his or her lifetime. ASCO offers cancer treatment summary forms to help keep track of the tumor treatment your child received and develop a survivorship care plan once treatment is completed.
Children who have had PPB can also enhance the quality of their future by following established guidelines for good health into and through adulthood, including not smoking, maintaining a healthy weight, eating a balanced diet, and participating in regular physical activity. Talk with your child’s doctor about developing a plan that is best for your child’s needs. Learn more about the next steps to take in survivorship.
To continue reading this guide, choose “Next” (below, right) for a list of questions you may want to ask your child’s doctor. Or, use the colored boxes located on the right side of your screen to visit any section.