ON THIS PAGE: You will find some questions to ask your doctor or other members of your health care team, to help you better understand your child’s diagnosis, treatment plan, and overall care. To see other pages, use the menu on the side of your screen.
Talking often with the doctor is important to make informed decisions about your child’s health care. These suggested questions are a starting point to help you learn more about your child’s care and treatment. You are also encouraged to ask additional questions that are important to you. You may want to print this list and bring it to your child’s next appointment, or download Cancer.Net’s free mobile app for an e-list and other interactive tools to manage your child’s care.
- What type of PPB has been diagnosed? What does this mean?
- Can you explain my child’s pathology report, or laboratory test results, to me?
- What is your familiarity with PPB and its treatment?
- Do you collaborate with the International PPB Registry?
- What are my child’s treatment options?
- What is the goal of each treatment? Is it to eliminate the cancer, help my child feel better, or both?
- What clinical trials are open to my child? Where are they located, and how do I find out more about them?
- What treatment plan do you recommend? Why?
- What is my child’s prognosis?
- Should I seek a second opinion?
- Does your practice include multidisciplinary care?
- Who will be part of my child’s health care team, and what does each member do?
- Who will be coordinating my child’s overall treatment and follow-up care?
- Do you attend expert meetings to discuss complicated tumor cases? What kinds of specialists attend such meetings?
- Will my child have surgery? If so, can you describe the surgery and recovery to me?
- Will my child receive chemotherapy? What chemotherapy will be given? How long and how frequently?
- Will my child receive radiation therapy?
- What are the possible side effects of each treatment, both in the short term and the long term?
- How will this treatment affect my child’s daily life? Will he or she be able to attend school and perform his or her usual activities?
- Is there anything we can do before starting treatment to avoid late effects?
- Could this treatment affect my child’s ability to become pregnant or have children in the future? If so, should I talk with a fertility specialist before cancer treatment begins?
- How long will my child stay in the hospital?
- If I am worried about managing the costs related to my child’s care, who can help me with these concerns?
- What follow-up tests will my child need, and how often will he or she need them?
- What support services are available to my child? To my family?
- Whom should I call for questions or problems?
The next section offers some more resources that may be helpful to you. Use the menu on the side of your screen to select Additional Resources, or you can select another section, to continue reading this guide.