ON THIS PAGE: You will read about your medical care after cancer treatment is completed, and why this follow-up care is important. To see other pages, use the menu on the side of your screen.
Care for people diagnosed with cancer doesn’t end when active treatment has finished. Your health care team will continue to check to make sure the cancer has not returned, manage any side effects, and monitor your overall health. This is called follow-up care.
This plan may include regular physical examinations and/or medical tests to monitor your recovery for the coming months and years. Diagnostic examinations, including CT scans, may be done to watch for potential recurrences or to monitor how well treatment is working. Most recurrences happen within the first two or three years after salivary gland cancer is diagnosed, so follow-up visits will be more frequent during the first two years.
Watching for recurrence
People with a history of salivary gland cancer need to be monitored throughout their lifetime for the possibility of recurrence or distant metastasis. Cancer recurs because small areas of cancer cells may remain undetected in the body. Over time, these cells may increase in number until they show up on test results or cause signs or symptoms.
During follow-up care, a doctor familiar with your medical history can give you personalized information about your risk of recurrence. Your doctor will also ask specific questions about your health. Some people may have blood tests or imaging tests as part of regular follow-up care, but testing recommendations depend on several factors including the type and stage of cancer originally diagnosed and the types of treatment given.
Managing long-term and late side effects
Most people expect to experience side effects when receiving treatment. However, it is often surprising to survivors that some side effects may linger beyond the treatment period. These are called long-term side effects. In addition, other side effects called late effects may develop months or even years afterwards. Long-term and late effects can include both physical and emotional changes.
Talk with your doctor about your risk of developing such side effects based on the type of cancer, your individual treatment plan, and your overall health. If you had a treatment known to cause specific late effects, you may also have certain physical examinations, scans, or blood tests to help find and manage them.
For people who had radiation therapy, periodic ear examinations are necessary to remove dried earwax buildup. Prevention of dental cavities is also important. Fluoride application is recommended whenever radiation therapy is directed at the oral cavity (mouth) and the salivary glands.
Rehabilitation is a major part of follow-up care after head and neck cancer treatment. People may need physical therapy and speech therapy to regain skills, such as talking and swallowing. Palliative care to manage symptoms and maintain nutrition during and after treatment may be recommended. Some people may need to learn new ways to eat or to have foods prepared differently. Special care of the eye is necessary if there is nerve function loss. Special procedures, such as moving a paralyzed vocal cord to improve voice, may be necessary after a large skull base tumor has been removed. Exposure to direct sunlight on affected skin should be avoided if radiation therapy has been used as part of the treatment.
After treatment for salivary gland cancer, people may look different, feel tired, and be unable to talk or eat the way they used to. Many people experience depression. The health care team can help people cope and connect them with support services.
Keeping personal health records
You and your doctor should work together to develop a personalized follow-up care plan. Be sure to ask about any concerns you have about your future physical or emotional health. ASCO offers forms to help create a treatment summary to keep track of the cancer treatment you received and develop a survivorship care plan once treatment is completed.
This is also a good time to decide who will lead your follow-up care. Some survivors continue to see their oncologist, while others transition back to the general care of their family doctor or another health care professional. This decision depends on several factors, including the type and stage of cancer, side effects, health insurance rules, and your personal preferences.
If a doctor who was not directly involved in your cancer care will lead your follow-up care, be sure to share your cancer treatment summary and survivorship care plan forms with him or her, as well as all future health care providers. Details about your cancer treatment are very valuable to the health care professionals who will care for you throughout your lifetime.
The next section in this guide is Survivorship, and it describes how to cope with challenges in everyday life after a cancer diagnosis. Or, use the menu on the side of your screen to choose another section to continue reading this guide.