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After treatment for sarcoma ends, talk with your doctor about developing a follow-up care plan. This plan may include regular physical examinations and/or medical tests to monitor your recovery for the coming months and years. ASCO offers cancer treatment summary forms to help keep track of the cancer treatment you received and develop a survivorship care plan once treatment is completed.
Regularly scheduled follow-up visits with the doctors involved in your treatment are important to find any possible tumor recurrence and to help manage and hopefully prevent some side effects related to treatment. A common follow-up schedule includes visits every three to four months for the first three years after treatment, visits every six months until five years after treatment, and annual visits thereafter. Chest x-rays or CT scans will be done regularly to look for any possible spread of cancer to the lungs during these follow-up visits. Imaging tests, such as MRI, ultrasound, CT scan, and/or PET scan are also sometimes performed on the area where the tumor began.
People who have been treated for sarcoma should be particularly careful to talk with their doctor about any new symptoms, such as a cough, pain, or a new lump. It may be a sign of a cancer recurrence, a late effect of treatment, or a problem unrelated to cancer. If a recurrence happens, it is likely to be within the first two years, but some sarcomas can recur much later.
For people who received radiation therapy, the region of the body that received radiation therapy can be at risk for limb swelling (lymphedema), fracture of the thigh or leg bones, poor mobility of joints, and fibrosis (hardness) of the soft tissues. Rarely, another sarcoma that is different from the original tumor may develop as a result of radiation therapy. Limb swelling can be managed with compression stockings and other special therapies that can be prescribed by doctors. Bone fractures may be prevented by avoiding certain high-impact exercises, which patients should talk about with their doctors. Joint mobility can be improved with a rehabilitation program. Fibrosis may lessened with several months of treatment with a combination of vitamin E and pentoxifylline, another oral medication. Skin that received radiation therapy should be regularly protected from sun exposure with clothing or sunscreen to reduce the chance of skin cancer developing in that area.
For patients treated for sarcoma in an arm or leg, a rehabilitation program after surgery or radiation therapy can help the patient regain or maintain limb function. Range-of-motion exercises, strengthening exercises, and a program to reduce limb swelling, if needed, may be recommended. Visiting a rehabilitation medicine specialist may be extremely important to help the patient receive the most appropriate rehabilitation after treatment. The majority of patients with a sarcoma in an arm or leg can be successfully treated and do maintain good limb function. However, particularly when the treatment included amputation, prosthetic services (artificial limbs) and mental health support can help manage the adjustment to life following treatment. Learn more about rehabilitation.
People recovering from sarcoma are encouraged to follow established guidelines for good health, such as maintaining a healthy weight, not smoking, eating a balanced diet, and having recommended cancer screening tests. Talk with your doctor to develop a plan that is best for your needs. Moderate physical activity can help rebuild your strength and energy level. Your doctor can help you create an appropriate exercise plan based upon your needs, physical abilities, and fitness level. Learn more about the next steps to take in survivorship, including making positive lifestyle changes.
Find out more about common terms used after cancer treatment is complete.