Oncologist-approved cancer information from the American Society of Clinical Oncology

Cancer-Specific Resources

This list offers groups classified by specific disease type. To view organizations that offer support and services for people with any type of cancer, view Cancer.Net’s General Cancer Groups list.

Below is a list of national, not-for-profit organizations that may be helpful in finding additional information, services, and support. Use the drop-down menu to find information on a specific category or type of cancer. This list is provided for informational purposes only. As always, be sure to talk with your health care team about any questions you may have about information you find. To request a group be added to this list, please see Cancer.Net’s Linking Policy.

Action to Cure Kidney Cancer

212-799-4354

American Kidney Fund

1-800-638-8299

Birt-Hogg-Dube Syndrome

1-877-764-4907

Kidney Cancer Association

800-850-9132

Kidney Cancer Canada

866-598-7166

National Organization for Rare Disorders (NORD)

203-744-0100
800-999-6673

Urology Care Foundation

410-689-3700 800-828-7866

VHL Family Alliance

617-277-5667
800-767-4845

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