Patient Information Resources

Adenoid Cystic Carcinoma Research Foundation
P.O. Box 422
Needham, MA  02494
Phone: 781-248-9699
www.accrf.org

Support for People with Oral, Head, and Neck Cancer, Inc.
P.O. Box 53
Locust Valley, NY  11560-0053
Toll Free: 800-377-0928
www.spohnc.org

National Organization for Rare Disorders
55 Kenosia Ave.
P.O. Box 1968
Danbury, CT  06813-1968
Toll Free: 800-999-6673 (voicemail only)
Phone: 203-744-0100
www.rarediseases.org 

Rare Cancer Alliance
1649 N. Pacana Way
Green Valley, AZ  85614
www.rare-cancer.org

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