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John W. Nick Foundation, Inc. P.O. Box 4133 Vero Beach, FL 32963 Phone: 772-589-1440 www.johnwnickfoundation.org
National Organization for Rare Disorders (NORD) 55 Kenosia Ave. P.O. Box 1968 Danbury, CT 06813 Toll Free: 800-999-6673 Phone: 203-744-0100 www.rarediseases.org
Rare Cancer Alliance 1649 N. Pacana Way Green Valley, AZ 85614 www.rare-cancer.org
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