After Treatment

The treatment of childhood NHL often involves prolonged hospital stays during each treatment cycle (one to two weeks). Also, some of the treatments may cause significant mucositis (inflammation of the mucous membranes) that may lead to pain, discomfort, and difficulty eating and drinking.

Most pediatric cancer programs provide emotional support, financial guidance, and social services support to families. These services can reduce the emotional pain and financial discomfort and should be used to the fullest extent possible.

After treatment for childhood NHL ends, talk with your child’s doctor about developing a follow-up care plan. This plan may include regular physical examinations and/or medical tests to monitor your child’s recovery for the coming months and years. All children treated for cancer, including NHL, should have life-long, follow-up care.

Long-term, follow-up care is critical for all children with NHL. Even though the risk of recurrence begins to decline after three years, long-term complications, such as heart problems and/or infertility, are possible. The risk of secondary cancers after treatment of childhood NHL is also possible, although the risks are only 1% to 2%. Yearly follow-up care by an experienced health care team is highly encouraged for survivors of childhood NHL.

Based on the type of treatment the child received, the doctor will determine what examinations and tests are needed to check for long-term side effects, such as heart problems and/or infertility, and the possibility of secondary cancers. Your child’s doctor can recommend the necessary screening tests. Follow-up care should also address the child’s quality of life, including any developmental or emotional concerns. Learn more about childhood cancer survivorship.

The child’s family is encouraged to organize and keep a record of the child’s medical information, so that as the child enters adulthood, he or she has a clear, written history of the diagnosis and details of the treatment given. The doctor’s office can help you compile this, and it should include recommendations from the doctor about the schedule for follow-up care. This information will be valuable to doctors who care for your child during his or her lifetime.

Children who have had cancer can also enhance the quality of their future by following established guidelines for good health into and through adulthood, including not smoking, maintaining a healthy weight, eating a balanced diet, and participating in regular physical activity. Talk with the doctor about developing a plan that is best for your child’s needs.

Find out more about common terms used after cancer treatment is complete.