Support Groups | Cancer.Net

Having cancer can be one of the most stressful experiences of a person's life. Support groups can help many people cope with the emotional aspects of cancer by providing a safe place to share experiences and learn from others who are facing similar situations.

Why join a support group?

Hearing "you have cancer" usually triggers a strong emotional response. While some people experience shock, anger, and disbelief, others may feel intense sadness, fear, and a sense of loss. A person may also feel lonely and isolated, as even the most supportive family and friends cannot understand exactly how it feels to have cancer.

Support groups offer the chance for people to talk about their experiences with others living with cancer. Group members can share feelings and experiences that seem too strange or too difficult to share with family and friends. The group experience can create a sense of belonging that helps each person feel less alone and more understood. Sharing feelings and fears with others who understand may also help reduce stress.

In addition to sharing their feelings and experiences, support group members discuss practical information such as what to expect during treatment, how to manage treatment side effects and pain, and how to communicate with health-care providers and family members. Exchanging information and advice may help achieve a sense of control and can reduce feelings of helplessness.

Many studies have shown that support groups can help people with cancer feel less depressed and anxious and more hopeful. Although support groups are not for everyone, people who benefit from support groups may find themselves better able to handle their symptoms and fears.

What types of support groups are available?

Some groups offer support through counseling and therapy, and others through information and education. Supportive groups focus on allowing people to share and discuss their cancer-related experiences. Groups led by group members are often called peer or self-help groups. A trained counselor, social worker, or psychologist may also lead these groups. Informational support groups are led by a professional facilitator, and focus on providing cancer-related information and education. These groups often invite speakers, such as doctors, who provide expert advice. Other groups combine both of these approaches.

Groups may also be designed for different audiences. Some groups are open to all individuals with cancer, and others are open only to people with one type of cancer, such as breast or prostate cancer. Some groups specialize in offering support to people of a certain age group or with a certain stage of cancer.

Support groups are also offered to caregivers, as family members and friends may also need encouragement while learning to cope when a loved one has cancer.

In recent years, Internet support groups have become more popular. These groups may be a good option for people who live in remote areas or for those without transportation. An Internet support group may allow people with rare types of cancer to communicate with others with the same type of cancer. Internet support groups may also be a good choice for those who do not feel comfortable sharing their experiences face-to-face.

Internet support groups allow people to communicate in a variety of ways:

Newsgroups and electronic mailing lists send messages written by group members to the entire group.
Discussion groups or message boards allow people to "post" a message so that others can reply to it.
Chat rooms allow group members to communicate with each other, in real time, by typing messages back and forth.

How does a person find a support group?

Check with his or her doctor or nurse, or the hospital or medical center where he or she is receiving treatment. Many hospitals and cancer treatment centers sponsor support groups for their patients. The social work or discharge-planning department at the hospital may also be able to help find a community support group.
Check with local branches of national organizations dedicated to helping people with cancer.
Use the public library to search for information on support groups and cancer organizations. Ask the librarian for help.
Check the health section of the local newspaper for support group listings.
Ask other patients for suggestions.

How does a person find a support group that is right for them?

This depends on the person's needs and personality. Some people may need emotional support, while others may prefer an emphasis on information and education. Some people may like sharing their experiences face-to-face with a group, while others may be more comfortable sharing in an anonymous environment, such as online.

Some people with cancer may not be interested in joining a support group or may find that support groups are not helpful for them. For these people, other methods of support may be more helpful:

Talking with a friend
Individual counseling or psychotherapy
Asking a doctor or nurse specific questions
Putting energy into other enjoyable activities

Additional resources

Cancer.Net's Patient Information Resources (organized by cancer type)

The American Cancer Society offers online support groups through the Cancer Survivors Network (CSN), as well as other support programs and services.

The Association of Cancer Online Resources (ACOR) offers online support groups.

CancerCare offers online support groups facilitated by oncology social workers. Both CSN and CancerCare also offer telephone-based support for people without computers.

Caregiving.com offers online support groups for caregivers.

The National Cancer Institute provides a detailed list of National Organizations That Offer Services to People with Cancer and Their Families.

The American Self-Help Group Clearinghouse is a guide for finding community support groups.

Vital Options® is a nonprofit cancer communications, support, and advocacy organization. Vital Options® is also a support group for young adults with cancer.

The Wellness Community is a free program of support, education, and hope for people with cancer and their loved ones. Their mission is to enhance health and well-being.