ON THIS PAGE: You will find information about how many children have this type of tumor each year and some general survival information. Remember, survival rates depend on several factors. To see other pages in this guide, use the colored boxes on the right side of your screen, or click “Next” at the bottom.
Extracranial, extragonadal germ cell tumors are rare. Each year, about 900 children and adolescents under the age of 20 are diagnosed with a germ cell tumor.
Extracranial germ cell tumors, including those that occur in the reproductive organs, account for about 7% of all tumors in children younger than 20 and about 16% in children age 15 to 19. About 61% of childhood germ cell tumors are extragonadal and most commonly occur in the sacrum and coccyx in the lower spine, chest, and abdomen. The overall survival rate (the percentage of people who survive at least five years after the tumor is detected, excluding those who die from other diseases) for children younger than age 20 with germ cell tumors is 87%.
Statistics should be interpreted with caution. It is not possible to tell a person how long he or she will live with a germ cell tumor. Because survival statistics are measured in five-year intervals, they may not represent advances made in the treatment or diagnosis of this tumor. Learn more about understanding statistics .
Statistics adapted from the National Cancer Institute (NCI) and the NCI Surveillance Epidemiology and End Results (SEER) database (2001-2007).
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