Talking often with the doctor is important [2] to make informed decisions about your child’s health care. These suggested questions are a starting point to help you learn more about your child’s care and treatment. You are also encouraged to ask additional questions that are important to you.

• What type of PPB has been diagnosed? What does this mean?
• Can you explain my child’s pathology report (laboratory test results) to me?
• What is your familiarity with PPB and its treatment?
• Do you collaborate with the International PPB Registry [3]?
• What are my child’s treatment options?
• What clinical trials are open to my child?
• What treatment plan do you recommend? Why?
• Should I seek a second opinion?
• Does your practice include multidisciplinary care?
• Who will be part of my child’s health care team, and what does each member do?
• Who will be coordinating my child’s overall treatment and follow-up care?
• Do you attend expert meetings to discuss complicated tumor cases? What kinds of specialists attend such meetings?
• What is my child’s prognosis?
• Will my child receive chemotherapy? What chemotherapy will be given? How long and how frequently?
• Will my child receive radiation therapy?
• What are the possible side effects of each treatment, both in the short term and the long term?
• How will this treatment affect my child’s daily life? Will he or she be able to attend school and perform his or her usual activities?
• Is there anything we can do before starting treatment to avoid late effects?
• Could this treatment affect my child’s ability to become pregnant or have children? If so, should I talk with a fertility specialist before cancer treatment begins?
• How long will my child stay in the hospital?
• If I’m worried about managing the costs related to my child’s care, who can help me with these concerns?
• What follow-up tests will my child need, and how often will he or she need them?
• What support services are available to my child? To my family?
• Whom do I call for questions or problems?