ON THIS PAGE: You will learn more about clinical trials, which are the main way that new medical approaches are tested to see how well they work. Use the menu to see other pages.

What are clinical trials?

Doctors and scientists are always looking for better ways to care for patients with mastocytosis. To make scientific advances, doctors create research studies involving volunteers, called clinical trials. In fact, every drug that is now approved by the U.S. Food and Drug Administration (FDA) was tested in clinical trials.

ON THIS PAGE: You will find information about the estimated number of people who will be diagnosed with mastocytosis each year. Use the menu to see other pages.

Every person is different, with different factors influencing their risk of being diagnosed with this disorder and the chance of recovery after a diagnosis. It is important to talk with your doctor about any questions you have around the general statistics provided below and what they may mean for you individually. The original sources for these statistics are provided at the bottom of this page.

ON THIS PAGE: You will find some helpful links to other areas of Cancer.Net that provide information about medical care and treatment. This is the final page of Cancer.Net’s Guide to Mastocytosis. Use the menu to go back and see other pages.

Cancer.Net includes many other sections about the medical and emotional aspects of cancer and cancer-related conditions, for the person diagnosed and their family members and friends. This website is meant to be a resource for you and your loved ones from the time of diagnosis, through treatment, and beyond.

ON THIS PAGE: You will read about the scientific research being done now to learn more about mastocytosis and how to treat it. Use the menu to see other pages.

Doctors are working to learn more about mastocytosis, how to best treat it, and how to provide the best care to people diagnosed with this disease. The following areas of research may include new options for patients through clinical trials. Always talk with your health care team about the best diagnostic and treatment options for you.

ON THIS PAGE: You will find some questions to ask your doctor or other members of your health care team, to help you better understand your diagnosis, treatment plan, and overall care. Use the menu to see other pages.

ON THIS PAGE: You will read about your medical care after treatment is completed, and why this follow-up care is important. Use the menu to see other pages.

Care for people diagnosed with mastocytosis doesn’t end when active treatment has finished. Your health care team will continue to manage any side effects, monitor your overall health, and check to make sure a mastocytosis-related cancer has not returned. This is called follow-up care.

ON THIS PAGE: You will learn more about coping with the physical, emotional, social, and financial effects of mastocytosis and its treatment. This page includes several links outside of this guide to other sections of this website. Use the menu to see other pages.

Every disease treatment can cause side effects or changes to your body and how you feel. For many reasons, people don’t experience the same side effects even when they are given the same treatment. This can make it hard to predict how you will feel during treatment.

ON THIS PAGE: You will learn about the different treatments doctors use for people with mastocytosis. Use the menu to see other pages.

ON THIS PAGE: You will learn that because mastocytosis is not a type of cancer there is no standard staging system. Use the menu to see other pages.

Staging is a way of describing where a cancer is located, if or where it has spread, and whether it is affecting other parts of the body. Because mastocytosis is not a type of cancer, there is no standard staging system.