ON THIS PAGE: You will find information about the number of people who are diagnosed with AdCC each year. You will also read general information on surviving the disease. Remember, survival rates depend on several factors. Use the menu to see other pages.
AdCC is rare. Each year, about 1,200 people are diagnosed with AdCC in the United States. About 60% are women. AdCC is most often found in younger and middle-aged adults, but anyone of any age can be diagnosed, including children.
The 5-year survival rate tells you what percent of people live at least 5 years after the cancer is found. Percent means how many out of 100. The 5-year survival rate for people with AdCC is approximately 89%. The 15-year survival rate for people with AdCC is approximately 40%.
A late recurrence of AdCC is common and can occur many years after initial treatment. A recurrence is cancer that has come back after treatment. A recurrence is most commonly diagnosed at the metastatic stage, meaning it has spread to other parts of the body. However, tumor growth for AdCC is often slow, and people may live a long time with metastatic disease.
It is important to remember that statistics on the survival rates for people with AdCC are an estimate. The estimate comes from data based on the number of people with this cancer in the United States. Also, experts measure the survival statistics every 5 years. So the estimate may not show the results of better diagnosis or treatment available for less than 5 years. Talk with your doctor if you have any questions about this information. Learn more about understanding statistics.
Statistics adapted from the Adenoid Cystic Carcinoma Research Foundation, the National Organization for Rare Disorders, and the Oral Cancer Foundation (all accessed January 2020).
The next section in this guide is Risk Factors. It explains what factors may increase the chance of developing AdCC. Use the menu to choose a different section to read in this guide.