Adenoid Cystic Carcinoma: Statistics

Approved by the Cancer.Net Editorial Board, 02/2022

ON THIS PAGE: You will find information about the number of people who are diagnosed with adenoid cystic carcinoma (AdCC) each year. You will also read general information on surviving the disease. Remember, survival rates depend on several factors. Use the menu to see other pages.

AdCC is an uncommon type of cancer. Each year, about 1,300 people are diagnosed with AdCC in the United States. Worldwide, an estimated 200,000 people have this disease. About 60% are women. AdCC can occur in adults and children.

The 5-year survival rate tells you what percent of people live at least 5 years after the cancer is found. Percent means how many out of 100. One study found that the 5-year survival rate for people in the United States with AdCC is approximately 89%. The 15-year survival rate for people with AdCC is approximately 40%.

A late recurrence of AdCC is common and can occur many years after initial treatment. A recurrence is cancer that has come back after treatment. About half of the time, recurrences of AdCC are diagnosed diagnosed at the metastatic stage, meaning it has spread to other parts of the body. However, tumor growth for AdCC is often slow, and people may live a long time with metastatic disease. 

It is important to remember that statistics on the survival rates for people with AdCC are an estimate. The estimate comes from annual data based on the number of people with this cancer in the United States. Also, experts measure the survival statistics every 5 years. This means the estimate may not reflect the results of advancements in how AdCC is diagnosed or treated from the last 5 years. Talk with your doctor if you have any questions about this information. Learn more about understanding statistics.

Statistics adapted from the websites of the Adenoid Cystic Carcinoma Research Foundation, the National Organization for Rare Disorders, and the Oral Cancer Foundation. (All sources accessed January 2022.)

The next section in this guide is Risk Factors. It describes the factors that may increase the chance of developing AdCC. Use the menu to choose a different section to read in this guide.