ON THIS PAGE: You will learn more about coping with the physical, emotional, social, and financial effects of a brain tumor and its treatment. Use the menu to see other pages.
Every treatment for a brain tumor can cause side effects or changes to your body and how you feel. For many reasons, people do not experience the same side effects even when they are given the same treatment for the same type of tumor. This can make it hard to predict how you will feel during treatment.
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As you prepare to start treatment, it is normal to fear treatment-related side effects. It may help to know that your health care team will work to prevent and relieve side effects. This part of treatment is called palliative and supportive care. It is an important part of your treatment plan, regardless of your age or the stage of disease.
Common physical side effects from each treatment option for a brain tumor are described in the Types of Treatment section. Learn more about side effects of a brain tumor and its treatment, along with ways to prevent or control them. Changes to your physical health depend on several factors, including the tumor’s location and grade, the length and dose of treatment, and your general health.
Talk with your health care team regularly about how you are feeling. It is important to let them know about any new side effects or changes in existing side effects. If they know how you are feeling, they can find ways to relieve or manage your side effects to help you feel more comfortable and potentially keep any side effects from worsening.
You may find it helpful to keep track of your side effects so it is easier to talk about any changes with your health care team. Learn more about why tracking side effects is helpful.
Sometimes, side effects can last after treatment ends. Doctors call these long-term side effects. Side effects that occur months or years after treatment are called late effects. Treating long-term side effects and late effects is an important part of survivorship care. Learn more by reading the Follow-up Care section of this guide or talking with your doctor.
You can have emotional and social effects after a brain tumor diagnosis. This may include dealing with a variety of emotions, such as sadness, anxiety, fear, or anger, or managing stress. Sometimes, people find it difficult to express how they feel to their loved ones. Some have found that talking to an oncology social worker, counselor, or member of the clergy can help them develop more effective ways of coping and talking about a brain tumor.
Patients and their families are encouraged to share their feelings with a member of their health care team. You can also find coping strategies for emotional and social effects in a separate section of this website. This section includes many resources for finding support and information to meet your needs.
Treatment for a brain tumor can be expensive. It may be a source of stress and anxiety for patients and their families. In addition to treatment costs, many people find they have extra, unplanned expenses related to their care. For some people, the high cost of medical care stops them from following or completing their treatment plan. This can put their health at risk and may lead to higher costs in the future. Patients and their families are encouraged to talk about financial concerns with a member of their health care team. Learn more about managing financial considerations in a separate part of this website.
Some groups of people experience different rates of new cases of brain tumors and experience different outcomes from their medical diagnosis. These differences are called “health disparities.” Disparities are caused in part by real-world barriers to quality medical care and social determinants of health, such as where a person lives and whether they have access to food and health care. Disparities more often negatively affect racial and ethnic minorities, people with fewer financial resources, sexual and gender minorities (LGBTQ+), adolescent and young adult populations, adults older than 65, and people who live in rural areas or other underserved communities.
If you are having difficulty getting the care you need, talk with a member of your health care team or explore other resources that help support medically underserved people.
Before starting treatment, talk with your doctor about possible side effects. Ask:
Which side effects are most likely?
When are they likely to happen?
What can we do to prevent or relieve them?
When and who should I call about side effects?
Be sure to tell your health care team about any side effects that happen during treatment and afterward, too. Tell them even if you do not think the side effects are serious. This discussion should include physical, emotional, social, and financial effects.
Family members and friends often play an important role in taking care of a person with a brain tumor. This is called being a caregiver. Caregivers can provide physical, practical, and emotional support to the patient, even if they live far away. Being a caregiver can also be stressful and emotionally challenging. One of the most important tasks for caregivers is caring for themselves.
Patients with a brain tumor often need a lot of support at home. Many patients may not be able to do activities important for their care, such as driving to and from appointments. And some may need modified living arrangements to accommodate physical challenges. This means that caregivers have a range of responsibilities on a daily or as-needed basis, including:
Providing support and encouragement
Talking with the health care team
Helping manage symptoms and side effects of the tumor and treatment
Coordinating medical appointments
Assisting with meals
Helping with household chores
Handling insurance and billing issues
Anticipating changes in mood, personality, and thinking and knowing how to best cope with these changes
A caregiving plan can help caregivers stay organized and help identify opportunities to delegate tasks to others. It may be helpful to ask the health care team how much care will be needed at home and with daily tasks during and after treatment. Use this 1-page fact sheet to help make a caregiving action plan. This free fact sheet is available as a PDF, so it is easy to print.
Looking for More on How to Track Side Effects?
Cancer.Net offers several resources to help you keep track of your symptoms and side effects. Please note that these links will take you to other sections of Cancer.Net:
Cancer.Net Mobile: The free Cancer.Net mobile app allows you to securely record the time and severity of symptoms and side effects.
ASCO Answers Fact Sheets: Read 1-page fact sheets on anxiety and depression, constipation, diarrhea, and rash that provide a tracking sheet to record details about the side effect. These free fact sheets are available as a PDF, so they are easy to print, fill out, and give to your health care team.
The next section in this guide is Follow-up Care. It explains the importance of checkups after treatment for a brain tumor is finished. Use the menu to choose a different section to read in this guide.