Ewing Sarcoma - Childhood and Adolescence: Statistics

Approved by the Cancer.Net Editorial Board, 01/2019

ON THIS PAGE: You will find information about the number of children and teens who are diagnosed with Ewing sarcoma each year. You will also read general information on surviving the disease. Remember, survival rates depend on several factors. Use the menu to see other pages.

Each year, about 200 children and teenagers in the United States are diagnosed with a Ewing tumor, most of which will be Ewing sarcoma. Ewing tumors make up about 1% of all childhood cancers. About half of all diagnoses of Ewing sarcoma are made in children between the ages 10 to 20. These tumors can also affect younger children and young adults in their 20s and 30s.

The 5-year survival rate tells you what percent of children and teens live at least 5 years after the cancer is found. Percent means how many out of 100. The 5-year survival rate is 78% for children under age 15 and 60% for adolescents aged 15 to 19.

Survival rates also depend on other factors, including how far the tumor as spread. The overall 5-year survival rate for people with a Ewing tumor that is only in the area it began (called localized) is 83%. If it has spread to the nearby region (called regionally), the 5-year survival rate is 69%. If the tumor has spread at the time of diagnosis, the 5-year survival rate is about 37%. There are other factors that have been linked to higher survival rates for all stages of Ewing tumors, such as: being under age 10, a smaller size tumor, if the tumor is in an arm or leg, normal levels of the enzyme lactate dehydrogenase (LDH) in the blood, and if chemotherapy is effective.

It is important to remember that statistics on the survival rates for children and teens with Ewing sarcoma are an estimate. The estimate comes from annual data based on the number of children and teens with this cancer in the United States. Also, experts measure the survival statistics every 5 years. So the estimate may not show the results of better diagnosis or treatment available for less than 5 years. Talk with your child’s or teen’s doctor if you have any have questions about this information. Learn more about understanding statistics.

Statistics adapted from the websites of American Cancer Society, National Cancer Institute, and St. Jude Children’s Research Hospital (January 2019).

The next section in this guide is Medical Illustrations. It offers drawings of body parts often affected by Ewing sarcoma. Use the menu to choose a different section to read in this guide.