ON THIS PAGE: You will find information about the number of children and young adults who are diagnosed with Ewing sarcoma each year. You will also read general information on surviving the disease. Remember, survival rates depend on several factors. Use the menu to see other pages.
Each year, about 200 children and young adults in the United States are diagnosed with a Ewing tumor, most of which will be Ewing sarcoma. Ewing tumors make up 1% of all childhood cancers. About half of all Ewing sarcoma diagnoses are in people between the ages of 10 and 20. These tumors can also affect younger children and young adults in their 20s and 30s. Almost all cases of Ewing sarcoma occur in white people.
The 5-year survival rate tells you what percent of children and young adults live at least 5 years after the cancer is found. Percent means how many out of 100. The 5-year survival rate for this type of cancer is 76% for children younger than 15 and 60% for young adults aged 15 to 19.
Survival rates also depend on other factors, including how far the tumor has spread. The overall 5-year survival rate for people with a Ewing tumor is 62%. If the tumor is found only in the area it began (called localized), the 5-year survival rate is 82%. If it has spread to the nearby region (called regional), the 5-year survival rate is 67%. If the tumor has spread to distant areas at the time of diagnosis, the 5-year survival rate is 39%.
There are other factors that have been linked to higher survival rates for all stages of Ewing tumors, such as being younger than 10, having a smaller sized tumor, having a tumor located in an arm or leg, having normal levels of the enzyme lactate dehydrogenase (LDH) in the blood, and whether chemotherapy effectively treats the cancer.
It is important to remember that statistics on the survival rates for children and young adults with Ewing sarcoma are an estimate. The estimate comes from annual data based on the number of children and young adults with this cancer in the United States. Also, experts measure the survival statistics every 5 years. So the estimate may not show the results of better diagnosis or treatment available for less than 5 years. Talk with your child’s doctor if you have any questions about this information. Learn more about understanding statistics.
Statistics adapted from American Cancer Society's (ACS) publication, Cancer Facts & Figures 2020, and the websites of ACS, the National Cancer Institute, and St. Jude Children’s Research Hospital (all sources accessed January 2020).
The next section in this guide is Medical Illustrations. It offers drawings of body parts often affected by Ewing sarcoma. Use the menu to choose a different section to read in this guide.