Lymphoma - Hodgkin - Childhood: Questions to Ask the Health Care Team

Approved by the Cancer.Net Editorial Board, 12/2018

ON THIS PAGE: You will find some questions to ask your doctor or other members of your child’s health care team, to help you better understand your child’s diagnosis, treatment plan, and overall care. Use the menu to see other pages.

Talking often with your health care team to make informed decisions about your child’s health care. These suggested questions are a starting point to help you learn more about your cancer care and treatment. You are also encouraged to ask additional questions that are important to you. You may want to print this list and bring it to your child’s next appointment, or download Cancer.Net’s free mobile app for a digital list and other interactive tools to manage your child’s care. It may also be helpful to ask a family member or friend to come with you to appointments to help take notes.

Questions to ask after getting a diagnosis

  • What type of lymphoma has been diagnosed?

  • What subtype of Hodgkin lymphoma does my child have?

  • What is the stage of the disease? What is the risk grouping?

  • Can you explain my child’s pathology report, or laboratory test results, to me?

  • What are my child’s treatment options?

  • What clinical trials are open to my child? Where are they located, and how do I find out more about them?

Questions to ask about choosing a treatment and managing side effects

  • What treatment plan do you recommend? Why?

  • What is the goal of each treatment? Is it to eliminate the cancer, help my child feel better, or both?

  • Who will be part of my child’s health care team, and what does each member do?

  • Who will be coordinating my child’s overall treatment?

  • What are the possible side effects of this treatment plan, both in the short term and the long term?

  • How will this treatment affect my child’s daily life? Will he or she be able to attend school or perform his or her usual activities?

  • If I am worried about managing the costs related to my child’s cancer care, who can help me with these concerns?

  • Could this treatment affect my child’s ability to become pregnant or have children in the future? If so, should my family talk with a fertility specialist before cancer treatment begins?

  • How will this treatment affect my child’s daily life? Will he or she be able to attend school or perform his or her usual activities?

  • If I’m worried about managing the costs related to my child’s cancer care, who can help me with these concerns?

  • What support services are available to my child? To my family?

  • If I have questions or problems, who should I call?

Questions to ask about having chemotherapy, targeted therapy, or radiation therapy

  • What type of treatment, or combination of treatments, is recommended?

  • How long will it take to give this treatment?

  • What side effects can we expect during my child's treatment?

  • Who should I contact about any side effects my child experiences? And how soon?

  • What are the possible long-term effects of having this treatment?

  • What can be done to relieve the side effects?

Questions to ask about planning follow-up care

  • What is the risk of the cancer returning? Are there signs and symptoms I should watch for?

  • What long-term side effects or late effects are possible based on the cancer treatment I received?

  • What follow-up tests will my child need, and how often will he or she need them?

  • How do I get a treatment summary and survivorship care plan to keep in my personal records? 

  • Who will be coordinating my child’s follow-up care?

  • What survivorship support services are available to me/my child? To my family?

The next section in this guide is Additional Resources. It offers some more resources on this website that may be helpful to you. Use the menu to choose a different section to read in this guide.