Mastocytosis: Statistics

Approved by the Cancer.Net Editorial Board, 01/2018

ON THIS PAGE: You will find information about the number of people who are diagnosed with mastocytosis each year. Use the menu to see other pages.

Mastocytosis is a rare disorder, and its true incidence rates are unknown. Mastocytosis affects males and females in equal numbers and can begin during childhood or adulthood.

When it occurs in childhood, the disease usually starts before a child turns 2 years old. Approximately 80% of childhood cases are diagnosed during the first year of life. Most of those cases only involve the skin. In adults, most cases involve the entire body, with less than 5% of cases limited to the skin.

Sources: National Institute of Health’s Genetic and Rare Diseases Information Center and the National Organization for Rare Disorders.

The next section in this guide is Risk FactorsIt explains what factors may increase the chance of developing this disease. Use the menu to choose a different section to read in this guide