Mastocytosis: Statistics

Approved by the Cancer.Net Editorial Board, 03/2023

ON THIS PAGE: You will find information about the estimated number of people who will be diagnosed with mastocytosis each year. Use the menu to see other pages.

Every person is different, with different factors influencing their risk of being diagnosed with this disorder and the chance of recovery after a diagnosis. It is important to talk with your doctor about any questions you have around the general statistics provided below and what they may mean for you individually. The original sources for these statistics are provided at the bottom of this page.

Mastocytosis is a rare disorder. There are fewer than 50,000 people with this disease in the United States. Mastocytosis generally affects males and females in equal numbers. The disease can begin during childhood or adulthood. When it occurs in childhood, mastocytosis usually starts within the first year of a child’s life. The survival rates for mastocytosis vary based on the type of masytocytosis diagnosed and the severity of the diagnosis.

Talk with your doctor if you have any questions about this information and to learn more about your specific diagnosis.

Statistics adapted from the websites of the National Institute of Health’s Genetic and Rare Diseases Information Center and the National Organization for Rare Disorders. (All sources accessed February 2023.)

The next section in this guide is Risk Factors. It describes the factors that may increase the chance of developing mastocytosis. Use the menu to choose a different section to read in this guide.