Mastocytosis: Statistics

Approved by the Cancer.Net Editorial Board, 01/2020

ON THIS PAGE: You will find information about the number of people who are diagnosed with mastocytosis each year. Use the menu to see other pages.

Mastocytosis is a rare disorder, and its true incidence rates are unknown. Mastocytosis generally affects males and females in equal numbers and can begin during childhood or adulthood.

When it occurs in childhood, the disease usually starts within the first 2 years of a child’s life. Approximately 80% of childhood cases are diagnosed during the first year of life. Most of those cases only involve the skin. In adults, most cases involve the entire body, with less than 5% of cases limited to the skin.

Talk with your doctor if you have any questions about this information.

Statistics adapted from the National Institute of Health’s Genetic and Rare Diseases Information Center and the National Organization for Rare Disorders (January 2020).

The next section in this guide is Risk Factors. It explains what factors may increase the chance of developing mastocytosis. Use the menu to choose a different section to read in this guide.