ON THIS PAGE: You will find information about the number of people who are diagnosed with a pancreatic neuroendocrine tumor (NET) each year. You will also read general information on surviving the disease. Remember, survival rates depend on several factors. Use the menu to see other pages.
Pancreatic NETs are uncommon, with about 1,000 people diagnosed each year in the United States. Pancreatic NETs account for about 7% of all pancreatic cancers. The number of all diagnosed NETs has been increasing by around 5% per year, but the reason for this is unknown.
People are usually diagnosed with a pancreatic NET between the ages of 30 and 60. However, when these types of tumors are the result of a genetic syndrome (see Risk Factors), the age of diagnosis is generally earlier, during childhood or young adulthood.
The 5-year survival rate tells you what percent of people live at least 5 years after the tumor is found. Percent means how many out of 100. In general, the 5-year survival rate for people with a NET of the pancreas is about 42%.
However, the survival rate depends on a variety of factors, including whether the tumor can be removed using surgery. If a tumor is localized and can be removed, the 5-year survival rate is about 55%. If a tumor cannot be removed, the 5-year survival rate is about 15%.
It is important to remember that statistics on the survival rates for people with a pancreatic neuroendocrine tumor are an estimate. The estimate comes from annual data based on the number of people with this type of tumor in the United States. Also, experts measure the survival statistics every 5 years. So the estimate may not show the results of better diagnosis or treatment available for less than 5 years. Talk with your doctor if you have any questions about this information. Learn more about understanding statistics.
Statistics adapted from the National Cancer Institute, the National Organization for Rare Disorders, and the Neuroendocrine Tumor Research Foundation (January 2019).
The next section in this guide is Medical Illustrations. It offers drawings of body parts often affected by a pancreatic neuroendocrine tumor. Use the menu to choose a different section to read in this guide.