ON THIS PAGE: You will find information about the number of people who are diagnosed with a neuroendocrine tumor (NET) each year. You will also read general information on surviving the disease. Remember, survival rates depend on several factors. Use the menu to see other pages.

Overall, it is estimated that more than 12,000 people in the United States are diagnosed with a NET each year, and approximately 175,000 people are living with this diagnosis. The number of people diagnosed with this type of tumor has been increasing for years. This increase is thought to be related to improvements in the way NETs are diagnosed, including better imaging tests and endoscopy, and increased awareness of these tumors.

The 5-year survival rate tells you what percent of people live at least 5 years after the tumor is found. Percent means how many out of 100. The 5-year survival rate for people with a NET varies and depends on several factors, including the type of NET, where the tumor is located, and whether the tumor can be removed using surgery. Visit the individual section for a specific type of NET for more information about survival statistics (see the Introduction for a list).

It is important to remember that statistics on the survival rates for people with a NET are an estimate. The estimate comes from annual data based on the number of people with this type of tumor in the United States. Learn more about understanding statistics.

Statistics adapted from the Carcinoid Cancer Foundation website. Additional resource was: Dasari A, et al.: Trends in the Incidence, Prevalence, and Survival Outcomes in Patients With Neuroendocrine Tumors in the United States. JAMA Oncol. 2017;3(10):1335–1342. doi:10.1001/jamaoncol.2017.0589. (All sources accessed January 2022.)

The next section in this guide is Risk Factors. It describes the factors that may increase the chance of developing a NET. Use the menu to choose a different section to read in this guide.