Pleuropulmonary Blastoma - Childhood: Questions to Ask the Health Care Team

Approved by the Cancer.Net Editorial Board, 06/2021

ON THIS PAGE: You will find some questions to ask your child’s doctor or other members of the health care team, to help you better understand your child’s diagnosis, treatment plan, and overall care. Use the menu to see other pages.

Talking often with the health care team is important to make informed decisions about your child’s health care. These suggested questions are a starting point to help you learn more about your child’s care and treatment. You are also encouraged to ask additional questions that are important to you. You may want to print this list and bring it to your child’s next appointment, or download Cancer.Net’s free mobile app for a digital list and other interactive tools to manage your child’s care. It may also be helpful to ask a family member or friend to come with you to appointments to help take notes.

Cancer.Net Mobile app question tracker

Questions to ask after getting a diagnosis

  • What type of PPB has been diagnosed? What does this mean?

  • Can you explain my child’s pathology report, or laboratory test results, to me?

  • Where is the PPB in my child's body?

  • What is your familiarity with PPB and its treatment?

  • Do you collaborate with the International PPB Registry?

Questions to ask about choosing a treatment and managing side effects

  • What are my child’s treatment options?

  • What is the goal of each treatment? Is it to eliminate the tumor, help my child feel better, or both?

  • What clinical trials are available for my child? Where are they located, and how do I find out more about them?

  • What treatment plan do you recommend? Why?

  • What is my child’s prognosis?

  • Should I seek a second opinion?

  • Does your practice include multidisciplinary care?

  • Who will be part of my child’s health care team, and what does each member do?

  • Who will be leading my child’s overall treatment?

  • Do you attend expert meetings to discuss complicated tumor cases? What kinds of specialists attend such meetings?

  • What are the possible side effects of each treatment, both in the short term and the long term?

  • How will this treatment affect my child’s daily life? Will they be able to attend school and perform their usual activities?

  • Is there anything we can do before starting treatment to avoid or reduce late effects?

  • Could this treatment affect my child’s ability to become pregnant or have children in the future? If so, should I talk with a fertility specialist before cancer treatment begins?

  • If I am worried about managing the costs of medical care, who can help?

  • What support services are available to my child? To my family?

  • If I have questions or problems, who should I call?

Questions to ask about having surgery

  • What type of surgery will my child have? Will lymph nodes be removed?

  • How long will the operation take?

  • How long will my child be in the hospital?

  • Can you describe what my recovery from surgery will be like?

  • Who should I contact about any side effects my child experiences? And how soon?

  • What are the possible long-term effects of having this surgery?

Questions to ask about having chemotherapy or radiation therapy

  • What type of treatment is recommended?

  • What is the goal of this treatment?

  • How long will it take to give this treatment?

  • Will my child receive this treatment at a hospital or clinic?

  • What side effects can my child expect during treatment?

  • Who should I contact about any side effects my child experiences? And how soon?

  • What are the possible long-term effects of having this treatment?

  • What can be done to relieve the side effects?

Questions to ask about planning follow-up care

  • What is the chance that the tumor will come back? Should I watch for specific signs or symptoms?

  • What long-term side effects or late effects are possible based on the treatment for PPB that my child received?

  • What follow-up tests will my child need, and how often will those tests be needed?

  • How do I get a treatment summary and survivorship care plan to keep in my child’s personal records?

  • Who will be leading my child’s follow-up care?

  • What survivorship support services are available to my child? To my family?

The next section in this guide is Additional Resources. It offers more resources on this website that may be helpful to you. Use the menu to choose a different section to read in this guide.