Conquer Cancer: Decades ago when Deb Mayer began her career as an oncology nurse, a cancer diagnosis was discussed in a whisper. Few treatments existed to extend a patient's life, and survivors were not a patient population the oncology community considered. Fast-forward 40 years. The hard conversations about life and death no longer allude us. Mayer learnt first-hand what it feels like for a patient with cancer to consider the worst. She, too, is a survivor. As the only nurse appointed to former Vice-President Joe Biden's Cancer Moonshot Initiative, Mayer shares with friend and colleague, Kathy Knafl, why she lends her voice to the ever-growing group of conquerors in need of information and guidance on life after cancer. We hear from Deb first.
Deb Mayer: When I started in oncology in 1975, there wasn't survivorship as a field because people didn't live that long. And when they were diagnosed with cancer, it was just at the time when we were starting to talk about it and even name it, and tell people that they had cancer because prior to that time—
Kathy Knafl: Oh, that's right.
Deb Mayer: -- it was the whisper. We didn't tell people because it was bad to do. In 1975, the five-year survival rate for all cancer survivors was about 48%. So not even half of the people lived five years. So we did palliative care from day one for all of our patients, and it was, to me, all about symptom management because if you can't relieve suffering—no matter how much time you have left. But over time, we now have almost 70% of people live five years or more.
Kathy Knafl: So did you call it palliative care back then?
Deb Mayer: No. We just called it care. We—
Kathy Knafl: Just called it care. Yeah.
Deb Mayer: Yeah. Now very little care is done in the hospital. You can actually be diagnosed and treated and never be in the hospital. And most of the care we have shifted to the family and the caregiver. Most of this is going on in the home. My analogy is, we get the snapshot, they do the video.
Kathy Knafl: Yeah. You were involved in the Moonshot to cure ancer, and you might want to say a little bit about the Moonshot was on.
Deb Mayer: Vice President Biden put together the Cancer Moonshot at the direction of President Obama because of his son, Beau, and his brain tumor, as well as his interest in healthcare and cancer care. So they put together, working with the National Cancer Institute, a panel of 28 leaders and experts from around the country, and I was the only nurse appointed to that.
What I brought to the table was not only representing nursing and cancer nursing—because we're the ones that do all the work. You can develop the best pill in the world that's going to cure everybody, but if you can't get the patient to take the pill, and manage the symptoms related to the pill, it's not going to matter.
I was also there representing the survivorship community which, now that we have made such progress in helping people live longer—there's now 15.5 million Americans who have had cancer. And that's 5% of our population. And if you're cured or have no evidence of disease, then you're sort of left on your own to figure out what the rest is. And that's when the survivorship movement started building in the '80s and '90s to say, "Don't forget about us. We're living with the residual issues of having the diagnosis," whether it's physical or psychological. As well as the long-term and late effects of what we've done to them to get them there.
Kathy Knafl: Yeah. I love the picture with you and Joe Biden.
Deb Mayer: I had my 15-second photo talk down. And I look up and I'm like, "Oh my God. He's tall and he's got gorgeous blue eyes." And it's like, "Oh, I think I'm in love [laughter]." It was one of my personal highlights.
Kathy Knafl: Yeah. It should be.
I guess I've always been frankly really impressed with your ability to make a difference on multiple fronts as an educator, as a researcher, as a clinician. Do you see any one of those as the driver?
Deb Mayer: Being a clinician drives everything because my obligation to my patients of today is to learn lessons that make it better for the patient for tomorrow. And my whole career's been about improving cancer care. I need to share what I've learned with others so that they don't have to learn those lessons over again.
Kathy Knafl: So I thought maybe we should end up talking about the walking group.
Deb Mayer: We were so excited that you were coming as the Associate Dean for Research at the UNC School of Nursing. We had established a walking group every Saturday morning which was as much for social as physical. And so we walked by what we knew was going to be your house and got up on the porch to look in the windows, because we weren't sure if you were there, and you and George looked back out [laughter].
Kathy Knafl: Yes. We did [laughter].
Deb Mayer: And so that started it. And then you joined our walking group and we've been doing it for almost 10 years.
Kathy Knafl: Over 10 years, we've sorted of intersected for an hour every Saturday morning and have these conversations. I think you were already a survivor when I joined the walking group. Tell the story of your experience with cancer.
Deb Mayer: When I was diagnosed, my daughter was 15. And when I was having some pretty extensive surgery, there's always a risk with surgery even though I had a good outlook and a good prognosis, so I made sure my affairs were in order to the point that I was asking a very good friend of mine, whom my daughter really likes, if, when the time comes, she would take my daughter for her wedding dress shopping, and to make sure that those kind of things were taken care of. And my friend said, "Well, I'll take her shopping even if you're still alive [laughter]." And, obviously, that wasn't going to be an issue, but it makes you think about the future in a different way.
Conquer Cancer: The Conqueror Cancer Foundation's mission is to conquer cancer worldwide by funding breakthrough research and sharing cutting-edge knowledge. To learn more about the participants in this session, and others like it, please visit conquer.org/storycorps.
Recorded and produced by StoryCorps, a national non-profit, whose mission is to preserve and share humanity's stories in order to build connections between people and create a more just and compassionate world. Learn more at StoryCorps.org.