ON THIS PAGE: You will find information about how many children learn they have craniopharyngioma each year and some general survival information. Remember, survival rates depend on several factors. To see other pages in this guide, use the colored boxes on the right side of your screen, or click “Next” at the bottom.
Approximately 776 children younger than 20 are diagnosed with craniopharyngioma each year in the United States. Craniopharyngioma accounts for approximately 6% of CNS tumors in people younger than 15 and about 2.5% of those in people aged 15 to 19. The five-year survival rate of children with craniopharyngioma is about 90%.
Survival statistics should be interpreted with caution. These estimates are based on data from thousands of children with this type of tumor, but the actual risk for a particular individual may differ. It is not possible to tell a person how long he or she will live with craniopharyngioma. Because the survival statistics are measured in five-year intervals, they may not represent advances made in the treatment or diagnosis of this tumor. Learn more about understanding statistics.
Statistics adapted from the Central Brain Tumor Registry of the United States and the National Cancer Institute.
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