Craniopharyngioma - Childhood: Statistics

Approved by the Cancer.Net Editorial Board, 01/2022

ON THIS PAGE: You will find information about the number of children who are diagnosed with craniopharyngioma each year. You will also read general information on surviving the disease. Remember, survival rates depend on several factors. Use the menu to see other pages.

This year, an estimated 140 children under the age of 15 in the United States will be diagnosed with craniopharyngioma. This type of tumor is diagnosed most often between the ages of 5 and 14, but it is possible for a person of any age to be diagnosed with craniopharyngioma.

The 5-year survival rate tells you what percent of children live at least 5 years after the tumor is found. Percent means how many out of 100. The 5-year survival rate for children under the age of 15 with craniopharyngioma is almost 96%.

It is important to remember that statistics on the survival rates for children with craniopharyngioma are an estimate. The estimate comes from annual data based on the number of children with this tumor in the United States. Also, experts measure the survival statistics every 5 years. This means the estimate may not reflect the results of advancements in how craniopharyngioma is diagnosed or treated from the last 5 years. Talk with your child’s doctor if you have any questions about this information. Learn more about understanding statistics.

Statistics adapted from the Central Brain Tumor Registry of the United States Statistical Report: Primary Brain and Other Central Nervous System Tumors Diagnosed in the United States in 2014–2018 (published October 2021) and the National Cancer Institute website. (All sources accessed January 2022.)

The next section in this guide is Risk Factors. It describes how there are currently no known factors linked with an increased chance of developing craniopharyngioma. Use the menu to choose a different section to read in this guide.