After a cancer diagnosis, it’s important to find credible information and support. With rare types of cancer, sometimes finding resources can be difficult. Cancer.Net provides comprehensive information about several types of rare cancers, in addition to more common types of cancer.
On Cancer.Net, you can find the following resources for rare cancers:
Disease-specific information for many rare adult and childhood cancers, including sections on diagnosis, treatment, clinical trials, areas of the latest research, what to expect after treatment, and questions to ask the doctor
Listings of cancer-specific national organizations that offer support to people with cancer and their families
Information about support groups and how to find one that is a good fit for you
National Cancer Institute-designated comprehensive cancer centers and cooperative groups that specialize in the treatment of rare cancer types
How to find an oncologist who specializes in the treatment of a rare cancer
A section on clinical trials
Additional educational and support resources are listed below. These links will take you outside of Cancer.Net.
National Organization for Rare Disorders (NORD)
Social media: NORD on Facebook (www.facebook.com/NationalOrganizationforRareDisorders) and Twitter (twitter.com/rarediseases)