Finding Information and Support Resources for Rare Cancers

Approved by the Cancer.Net Editorial Board, 04/2018

After a cancer diagnosis, it’s important to find credible information and support. With rare types of cancer, sometimes finding resources can be difficult. Cancer.Net provides comprehensive information about several types of rare cancers, in addition to more common types of cancer.

On Cancer.Net, you can find the following resources for rare cancers:

Additional educational and support resources are listed below. These links will take you outside of Cancer.Net.

National Organization for Rare Disorders (NORD)
Toll-free: 800-999-6673
Social media: NORD on Facebook ( and Twitter (

Rare Cancer Alliance
Social media: Rare Cancer Alliance on Facebook ( and Twitter (

CureSearch for Children’s Cancer
Toll-free: 800-458-6223
Social media: CureSearch on Facebook ( and Twitter (

National Cancer Institute (NCI)
Toll-free: 1-800-4 CANCER (1-800-422-6237)
Social media: NCI on Facebook ( and Twitter (

National Library of Medicine (NLM)
Toll-free: 888-346-3656
Social media: NLM on Facebook ( and Twitter (

Related Resources

Evaluating Cancer Information on the Internet

Cancer.Net Blog: Living With a Rare Cancer – My Dr. Seuss World