ON THIS PAGE: You will find information about the number of people who are diagnosed with amyloidosis each year. You will also read general information on surviving the disease. Use the menu to see other pages.
Because amyloidosis is rare, the diagnosis is often delayed or the condition is not diagnosed. Therefore, it is difficult to know exactly how many people are affected by this disease. It is estimated that about 4,000 people develop amyloid and light chain (AL) amyloidosis each year in the United States. The disease is typically diagnosed between the ages of 50 to 65. However, people as young as 20 have also been diagnosed with AL amyloidosis.
Hereditary and autoimmune amyloidosis (AA) are less common than AL amyloidosis. Some research notes that the number of cases of AA amyloidosis are declining due to better treatments of the underlying inflammatory conditions.
The survival rate for AL amyloidosis depends on different factors, including how early it is diagnosed, if and how the heart is affected, and how well treatment works.
It is important to remember that statistics on how many people are diagnosed with amyloidosis are an estimate. Talk with your doctor if you have any questions about this information. Learn more about understanding statistics.
Statistics and information adapted from the National Organization for Rare Disorders, Mayo Clinic, and Medscape websites. (Sources accessed January 2022.)
The next section in this guide is Risk Factors. It describes the factors that may increase the chance of developing amyloidosis. Use the menu to choose a different section to read in this guide.