For many people with cancer, connecting with others provides emotional support and inspiration during a challenging time. Whether it's joining a support group or finding a support buddy, there are several options to get the help you need. Joining an online community makes it easier to connect with others, even if they live far away.
About online communities
Online communities let you create a personal profile where you share information about yourself for others to view. You choose whom to invite or allow access to your profile. Online communities offer several benefits for people with cancer, such as:
Making it easier to stay in touch with family and friends
Connecting you with others in a similar situation
Helping people find support no matter where they live
Giving people who don't like face-to-face groups another option to connect with others
In an online community, you can post a picture or video of yourself and share updates with people in your network whenever you choose. You are free to decide how much information you are comfortable sharing with others. Several sites offer privacy settings and tools, which let you control who can view your profile and what they can see or read. When creating a profile, learn about the privacy settings and options the site offers. This will help you find out how your information is used and how it can be accessed. Learning about such features may help you feel more comfortable when sharing your profile.
Sharing stories with other people in an online community could be a way for you to learn about treatment options and other concerns, such as side effects. While sharing these experiences is helpful, keep in mind that only your doctor can give you the best advice for your type of cancer and situation. And remember that your experience with side effects may be different from others.
If you have thought about joining an online community, here are some organizations that offer communities that can be personalized or communities for different types of cancer:
4th Angel Mentoring Program provides free, one-on-one, confidential telephone support for people with cancer and their caregivers. Trained mentors who are cancer survivors or have been a caregiver to a person with cancer offer support and guidance during a difficult time.
Inspire features groups for people with cancer and their caregivers. You can also join groups for other health conditions besides cancer. Once you join a group, you can post questions and comments on discussion boards and connect with other group members. Help other members and give encouragement by responding to their stories and questions. Several patient advocate organizations feature support communities on Inspire.
MyLifeLine.org is a part of the Cancer Support Community. It provides free websites for people with cancer and caregivers to keep family and friends updated. Sharing a web page helps reduce the number of times you have to repeat similar conversations to people concerned about you. A calendar on the site helps you keep track of doctor and treatment visits and other important appointments. Plus, you can post requests for help, such as rides to appointments, babysitting, or donations.
Lotsa Helping Hands helps you coordinate caregiving tasks among family members and friends. Simply fill in requests for help on a group calendar for visitors to sign up to help. For example, post the dates and times that a ride is needed to and from treatment or mark a time when help is needed with grocery shopping. Use message boards to stay up to date and try their mobile application that helps you connect. They also provide support to members and coordinators of the My Cancer Circle communities.
CancerCare offers about 100 online groups for people with cancer and their loved ones. The groups are led by oncology social workers who give support and guidance.
Cancer Support Community is an international nonprofit dedicated to providing support, education, and hope to people affected by cancer. They provide support services through a network of professionally-led community-based centers, hospitals, community oncology practices, and online.
CaringBridge helps you create a free, private, and secure web page, communicate updates in a patient care journal, share pictures, and coordinate help.
Friend for Life Cancer Support Network is a network of cancer survivors and caregivers who provide compassionate, one-on-one support to others diagnosed with cancer and to their loved ones.
Know Cancer is dedicated to connecting, educating, and empowering all people affected by the many forms of cancer. It offers an online community that provides social and professional support to patients and their loved ones.
Navigating Cancer is a free website specifically for people with cancer and their supporters, offering tools and cancer resources that empower patients to take control of their health and partner more closely with their physicians, support network, and other like patients.
Smart Patients is an online community where patients and families affected by a variety of illnesses can learn from each other about treatments, challenges, and how it all fits into the context of their experience.
More online options
Many patient advocate organizations offer online support services, such as discussion forums and chat rooms. Look for disease-specific patient advocacy organizations for information on what resources or online support services they offer.